Saturday, June 21, 2008

It's been awhile...

So, it's been awhile since I've posted in my blog. We're doing well here. Jack and I are staying busy, although I make an extra effort to stay close to home b/c of gas prices. I have thought about how great it would be to live on a large piece of land in the country, and then I realize that there are great benefits to living in town. Everything is within a few miles of our home. Now, if only they would improve the sidewalks on some of the main roads, and we can ditch the car all together. :)

I recently read this list (below, in purple) of what to do/say and not do/say when someone has lost a child. I think it's hard for people to read me, b/c I often appear "just fine", when really, I'm a mess inside. Other times, I really am doing okay. I don't blame others for not understanding, but I can honestly say that one of the most difficult aspects of losing Bernadette is the feeling of isolation. Of people unintentionally saying the wrong things, of people not realizing what hurts. Of people not talking about this terrible experience b/c they don't want to make me upset. Or maybe they have forgotten. Again, I don't have the expectations that I once had. I've realized that I would be equally clueless if I had never experienced something like this. I do appreciate all of you who have asked me how I am doing. And I mean how I am really doing. I got off the phone with my friend Mandy a few weeks ago, and I just felt this huge weight being lifted off of my shoulders. I was so grateful for her honesty and willingness to talk about my loss. For being the one instigating the questions, not waiting for me to bring it up (b/c oftentimes, I'm afraid that the other person isn't interested if she doesn't ask about it). And for reminding me that she is always available to listen if I needed an open ear. Even though it's been 8 months, I still feel very haunted by Bernadette's death, although it isn't as constant as it once was. And I can't say enough how comforting it is to be able to talk about it. If it seems that I talk too much about it or if the subject is getting just plain old, I apologize. My loss is something that hardly ever leaves my mind, so it is a very natural process for it to overflow into my conversations. I am sorry if it feels uncomfortable or gets old. Hopefully, someday I'll be able to just keep my thoughts to myself. :)

I talk to several moms online whom I've become close to, and I've noticed that it is not uncommon for those who have suffered infant losses to have a VERY hard time around other babies. At first, I thought I was nuts, and I tried to force myself to be ok around other infants. But then I realized that it is very normal to have this reaction. I can't express enough how my heart crumbles into pieces when I see or hear about other babies who are close to Bernadette's age. It's not about jealousy or envy. It's about having the reminder of my loss being shoved into my face. The reminder of what is missing in my life. And I suspect this doesn't change even after having subsequent children. Undoubtedly, time will heal, but even after 8 months, it is still very painful. My baby should be making faces at her big brother, receiving hugs and love from him. She should be learning to crawl (ok, maybe not yet, since she will have spent much of her infancy in a hospital crib). She should be drooling and squeeling. Not buried 6 feet underground.

Anyway, here is the article. Maybe it can help those who have friends in similar situations as myself:


Written by Elspeth Ludemann. First published in "North and South" (New Zealand)
in March 1991).

My child has died - what can you do to help?

Please don't ask "how are you?" unless you really want to know the answer...
"How are you?" has become a meaningless greeting to which the expected answer is
"fine". But I am not fine. At best I'm a bit fragile and a lot of the time I'm
far worse - I feel upset, hurt, bewildered, angry, guilty. But these and other
normal feelings which follow the death of someone you love are not the things of
polite conversation. So if you are not prepared to hear about them, choose
another way to greet me.

Don't expect too much of me too soon....
If I'd broken my leg I'd have a plaster cast on and you wouldn't expect me to
get back to normal for months. You can't put broken feelings in plaster and you
can't see the scars. But they need time to heal and I need time to come to terms
with the realisation that "normal" from now on is life without my child.

Don't ignore the death or the child that died...
You wouldn't have any trouble talking about good news. If I'd just won Lotto it
would be the first thing you would mention. Bad news is different - you probably
don't know what to say or how to say it. But the death of my child is the most
important thing in my life and it helps to acknowledge that.

Be honest, and try to avoid platitudes...
"This is awful, I don't know what to say" is far more help than cliched phrases
that aren't true anyway. Time alone doesn't heal, the fact we've got each other
is irrelevant because two drowning people can't save each other and there is no
comfort in the thought of this misery being God's will.

Don't think that having, or being able to have, other children will lessen the
pain of my child's death...
A child who loses a favorite toy will not be placated by a substitute. And so it
is with people. I loved my child for who he was as an individual, not as an
interchangeable piece in a set and mourning for him, at least at first, will
strain rather than strengthen bonds with other children.

If you want to help, make specific offers not empty promises...
Saying "if there's anything I can do" might make you feel good, but I'm unlikely
to take you up because I probably don't know what I need and I'm unsure what
your "anything" means. However if you turn up with food, an offer to baby-sit,
or just a listening ear, your kindness will be gratefully accepted.

Practice, don't preach...
However weak or strong my faith, and whatever your beliefs, this is no time for
sermons.

Be sensitive...
I find it hard to believe life in the outside world is still going on when my
private world has collapsed. I hope my child's death won't leave me bitter. But
it will take me time before the weight of my own feelings lightens enough to
allow me to share your joys or sorrows.

Don't expect me to follow a prescribed pattern of grieving...
Denial, anger, guilt, depression and acceptance are all stages in the grief
process but no two people will go through them in the same way. I'll have good
days and bad days, sometimes I'll cope with a lot, at other times I'll be phased
by little things. It may seem illogical to you, but then feelings often are.

Don't confuse control with coping...
A stiff upper lip probably means I've got a tight rein on my feelings, not that
I have come to terms with them. You may not be comfortable with crying or
screaming but they are far healthier than numbness, which is a sign of denial.

Keep in touch...
I'll always be grateful for the practical and moral support you gave immediately
after the death and I know you have to get on with your life. But grief doesn't
end with the funeral and occasional phone call, note or visit will let me know
you haven't forgotten.

The death of my child has left me emotionally and spiritually shattered. It will
take time to put the pieces together again, to rebuild relationships. But when
things get really bad, knowing there is a friend who cares may be all I need to
tip the balance in favour of recovery.


~~~~~~~~~~~~~~~~~~

By the way, here is a video John Mark took on Jack's birthday. We had a low-key weekend, but Jack seemed to enjoy himself regardless...



I also have a bunch of beach photos and will post them soon.

6 comments:

Jennifer said...

Hmmm... it's all definite food for thought, isn't it? I've so often wished that I've had a magical band-aid that would ease the pain and suffering of all of my friends.

But, what the artical says certainly seems to ring true. Eloquent words however well intentioned don't super glue a heart and emotions back together. Even I've learned that as I've made my way to where I am.

But, I can say that I think you're an amazing woman. You and Petra both are doing what it takes to get through one day at a time. As I've been told, trying to take more than one day at once can lead to attacks of several days at the same time! :-) Talk about stress!

Let me know if you'd like to do something sometime... maybe even try out a new recipe for our husbands together? I promise we can sneak in a few veggies! I made a great chef salad the other night!

:-)

Take Care!

Jen

Heather said...

Thanks for posting this. I'm so sorry about your Bernadette. I'm going through the "hard to see other babies" thing right now and your words ring so true. It's a difficult balance, when those babies belong to people who are important in your life.

Take care.

royster family said...

I know you don't know me, but i keep up with your blog and me and my family pray for you often-I am Caty Stokes sister. Our specific prayer for months for you has been for your loss to help others come to know our FATHER and the "peace that passes all understanding." I am not pracing to you at all, but just simply want you to know that you matter! Your loss of Bernadette matters. Your husband and your son matter to our family and others we have shared it with.

I tend to keep my blog lighthearted and silly and nver really delve into anything to deep-so only read mine if you need a laugh!:)

I wanted to share a blog with you that I also read everyday. It is an unimaginable set of events that have taken place in this womans life and includes the death of her infant daughter a few months ago and just recently her infant nephew. There is a chance you have already seen this, it is a very wide spread blog. It is http://audreycaroline.blogspot.com/
Just incase you have not seen it, I want you to know she goes into specific gut wrenching details about the death of daughter, but the healing journey she shares has changed my life. It might be too much for you right now, I don't know. Now that I have written a novel, just know you are loved-even by people you don't even know.

Hope for you, Melissa Royster

royster family said...

correction to my comment...I am not pracing??? I meant I am not preaching!

Mandy said...

Michele,
I'm glad our conversation a couple of weeks ago helped you be able to open up and put your feelings into words. I will never get tired of hearing how you truly feel. If you are having a good day or a horrible one, I want to be there for you. I am always here for you and want you to know that you can talk to me about anything at anytime. You are such a great Mother, and friend. I am continuously praying that you have peace.

I think this post will really help myself and others.

Michele said...

Melissa - I do keep up with that blog too! Reading stuff like that is actually very therapeutic for me. The tragedy of her nephew is gut-wrenching. After reading about it, I immediately went into my son's room and cried as he slept, thanking God for his good health.

I don't think you were preaching, and I agree with you. God's will is perfect in every way, and I pray that others can come out of tragedies like this with a fuller faith and peace in Christ. I know I have. I appreciate you letting me know that there are people out there that read my blog. Knowing that people are affected by her brings added meaning to her death.

God Bless!
Michele